CLICK HERE TO REMOVE THESE ADVERTS


Page 14 of 17 FirstFirst ... 41213141516 ... LastLast
Results 131 to 140 of 164

Thread: Mariesnowgoose, cancer and some community support.

  1. #131

    Member Number
    22267
    Join Date
    Feb 2012
    Posts
    4,527


    CLICK HERE TO REMOVE THESE ADVERTS
    Quote Originally Posted by mariesnowgoose View Post
    So, as hippy would say, here we are at 'silly o'clock' in the morning

    Been attempting to think everything through logically and my thoughts are going along these lines.

    When I was first diagnosed with breast cancer back on the 1st March one comment from the consultant stuck in my mind very strongly:

    He said "It doesn't matter whether we operate on you next week or in 3 months time, the outcome will be the same, there is no rush".

    Also that it was fine to change my mind about whether to have a partial or full mastectomy, the decision was up to me. It made no difference going for one or the other and even if I turned up on the day of the operation and changed my mind at the last minute and decided I need more time to decide it was perfectly OK to do that.

    What has happened in the interim:


    1. I (luckily as it happens!) decide to go for full mastectomy, no messing about.
    2. Follow up from operation I am told that in the end I had made "the right decision" as the tumour was bigger than they thought and I would have needed to go back for a second operation for full mastectomy anyway if I'd initially decided on just partial.
    3. Told their is a discrepancy between the pathology report and the 'team' report and that on that basis it is safer to go for a lymph gland removal operation.
    4. I subsequently notice that the other breast is now starting to show cancer symptoms.

    New to this game, I am then told post-op that mammograms, x-rays and ultra scans don't see everything.
    So tell me what I didn't know - but you medical guys did - after the event why don't you?!

    Which gets me to thinking: if the consultant said at the beginning there is no rush and he could just as easily have done the first operation 3 months down the line then that still stands, yes? So if I decide to hold back on this second lymph node op until I have the reassurance of a full body scan that would be a perfectly reasonable thing to ask for under the circumstances?

    What if the cancer has actually jumped ship and is elsewhere? After all, I know now that ultra scans, x-rays & mammograms can't see everything. They a) can't see the actual size of the tumour or how far the cancer has spread away from it and b) didn't pick up anything wrong with the other breast when there damn well is.

    Seems to me they work in partial darkness on a 'cut it open and see' basis, even if they do follow tried and tested methods for treating breast cancer - or a 'path' as harrow said.

    EXCEPT! - IF there is cancer elsewhere in the body that surely impacts on whether it's worth bothering with the lymph node removal in the first place? After all, quality of life is most important here. If lymph nodes are removed which could possibly cause lymophodemia and a weakening of the muscles in my dominant arm and I find out further down the line that there is cancer elsewhere anyway I'll have an unnecessarily b*gg*red up arm on top of possibly more seriously affected parts of the body.

    I am inclining more and more to delaying the lymph node op until I've had a PET/CT scan which will give a full picture of what the hell is going on inside the body, including which other lymph nodes are/are not infected. To me that's a no brainer, I don't care what the so-called specialists say, cos I'll bet your bottom dollar the reason why a full body scan isn't offered to all suspected cancer patients right from the off is down to COST. Call me cynical, but I bet I'm damn well right!

    Well, it's about 2:45am now, so I'll shuffle off and make a hot drink and go try get a bit of shuteye, there is another battle to be fought tomorrow.

    Wish me luck, and thanks to those of you who bother to read all my stupid waffling!
    CT scans are not that expensive a chest and abdominal scan should be available for 750

    Having said that my original cancer 35 years ago had spread and the oncologist knew where it would go they knew the path or story and because that cancer produced markers in my blood they knew it was still cancer growing, having said that the CT scan could not see it but that was 35 years ago.

    Again having said that, there are negative effects of scans but the good should out weigh the bad.

    I had chemo and of course that explored all over my body, I had to stay in hospital for mine but I think that a lot more is done at home now.

    35 years ago after I had chemo I used to have weekly out patient check ups at the hospital, but I don't think you would get that now.

    We have to thank those that went before use because they taught the doctors what they know now.

    Cancer is a wicked killing machine, the ultimate suicide bomber.

    Marie take comfort that the doctors do know what is happen to you, they are just not good explaining it to you.

    As an engineer I have to live with my mistakes, as a medic you can just move on to the next hospital patient.

    Me, you, Nigel we are on a well trodden path and lets hope for a better tomorrow !

  2. #132

    Member Number
    16698
    Join Date
    Apr 2011
    Posts
    9,950
    Motorhome
    swift
    Same as Andrew, it's weird pressing "like" but it's just to let you know that we have read your waffling .

    I hear what your saying about the now......three month scenario, but as far as I was concerned, I wanted it gone asap. I just didn't want it inside me any longer than was necessary,

    As regards the scans, x rays and ultra sounds, they can't detect everything, only what the can see detect, at that moment in time. A week, month down the line, they may see something different. What i'm trying to say is that you can only make decisions on what you know now, not on what may happen.

    If your cancer has spread, then you attack each bit of it as you find it. Treatment today is improving all the time, make best use of it....now. It's easy for the experts to say time isn't critical but, they aren't the one who has it.

    Just deleted a load of waffle cos I realise where your coming from. If you have a scan and the outcome isn't good, why have more invasive treatment.

    David was diagnosed with, as the oncologist put it, "extensive" oesophageal cancer. It's not one that is easy to treat and the five year statistics arn't good. I think we were both thinking along the lines of 12 months, but he's still here.....two and a half years on. His quality of life isn't what it was, limited energy, difficulty eating....but he's still here, able to enjoy time with his g/kids, in your case, next doors cat, and getting away in the van. After his treatment finished, he had a full body scan, and they couldn't find any signs of cancer,....at that moment in time.

    We don't know what the future holds, we can only do our best with the information we have.

    Hope a havn't confused you more, Off to the hospital now. Himself has two appointments this morning , one for his eyes and one for his foot,

  3. #133

    Member Number
    22267
    Join Date
    Feb 2012
    Posts
    4,527
    Only a reflection on a past conversation.

    A couple of years ago I was talking to my wife's oncologist (cancer doctor).

    The doctor knew about my cancer as well.

    I said we had to get a new central heating boiler and I was bothered about having people working in my home ( my place of sanctuary) and the cost of the work.

    I said to the doctor the central heating boiler had a longer guarantee than we had,

    she was young and said she had never faced things like that herself.

  4. #134

    Member Number
    26242
    Join Date
    Jun 2012
    Posts
    1,139
    Location
    Suffolk & central Portugal
    Motorhome
    Converted Citroen relay mwb
    Marie, I hope you have managed to find some help or at least made a plan. Have you tried contacting your hospitals imaging department and asked how you go about getting a full body CT privately. If they don't offer a service then your local private hospital will have a facility and can tell you a price and arrange one. A PET scan would have to be done at the nearest centre but, again, the imaging department at NHS or private should be able to tell you how to access one. When I was ill post op and couldn't get anyone ( the surgeon who did the op!) to help, I went to the local spire hospital. The consultant saw me and arranged all the tests and scans the next day under the NHS, just had to get the GP to send a letter. Had to pay for the consultantion but it was really worth it. Sometimes PET scans aren't appropriate and a full body CT will suffice but you should be able to get one privately.
    Personally I would have the nodes removed as the cells can spread from there and although the surgeon said initially you could wait up to three months, it sounds different now. Lymphoedema happens but if you are aware and treat any sign immediately it is maybe less of a risk.
    Good luck whatever you decide! X
    Thanks mariesnowgoose thanked for this post

  5. #135
    mariesnowgoose's Avatar
    mariesnowgoose is offline Official OTW
    Name: Marie
    Spouse: She's picking on me again

    Member Number
    22098
    Join Date
    Jan 2012
    Posts
    11,859
    Motorhome
    Laika Ecovip 400i
    I Finally got to speak to a cancer nurse at the hospital at 6pm last night, feeling reassured but what a battle it has been to get to speak to someone.

    I am going in for the op, have to check in at 7am today.
    Should be out the other end by around midday as I'm second in the queue.

    Hello again sausage machine see you all later
    Life: unfinished threads in a never-ending tapestry
    There but for the grace of God go I

  6. #136

    Member Number
    17598
    Join Date
    Jun 2011
    Posts
    1,509
    Motorhome
    Homecar PR62
    Good luck Marie. Hope all goes well. M
    Thanks mariesnowgoose thanked for this post

  7. #137

    Member Number
    22267
    Join Date
    Feb 2012
    Posts
    4,527
    Quote Originally Posted by mariesnowgoose View Post
    I Finally got to speak to a cancer nurse at the hospital at 6pm last night, feeling reassured but what a battle it has been to get to speak to someone.

    I am going in for the op, have to check in at 7am today.
    Should be out the other end by around midday as I'm second in the queue.

    Hello again sausage machine see you all later
    Will speak again when your on the other side.

    General anesthetic is clever stuff your here one minute and gone the next, and have you noticed that time stands still while your asleep, no nasty dreams either.

    Have you done Neil a packed lunch so he does not get hungry ?
    Thanks mariesnowgoose thanked for this post

  8. #138

    Member Number
    22267
    Join Date
    Feb 2012
    Posts
    4,527
    Remember its a well trodden path, good luck you will be fine !
    Likes mariesnowgoose, RoadTrek Boy liked this post
    Thanks mariesnowgoose thanked for this post

  9. #139

    Member Number
    16698
    Join Date
    Apr 2011
    Posts
    9,950
    Motorhome
    swift
    You will be in by now then. Better to get it done early.......less worrying and you're not left half starving.

    Bring on coffee and cake.
    Likes channa, trixie88, mariesnowgoose liked this post

  10. #140

    Member Number
    6231
    Join Date
    Apr 2009
    Posts
    10,980
    Motorhome
    CI Euro Riviera 100
    Good luck. I am glad some of your reservations have hopefully been addressed and explained. I suspect at some point plenty of blood tests certainly with my conditions a lot of emphasis is placed blood tests show all sorts of indicators amazing really

    Channa
    Likes trixie88, mariesnowgoose liked this post
    Thanks mariesnowgoose thanked for this post

Page 14 of 17 FirstFirst ... 41213141516 ... LastLast

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •